Nancy's Cancer Blog

RAI

Has anyone done radioactive iodine therapy? My endocrinologist is suggesting it but I’m not sure. I can’t afford the thyrogen, so I will have to go off my synthroid and go hypo for a bit. I’m worried about the possible salivary gland problems. Any input would be greatly appreciated!

Sterling sent you a prayer.
Sign in or sign up to post a comment.
Read some of the blogs of people here on blogforacure.
Yes, you can expect some decrease in salivary gland function.
I tend to have a little dry mouth. I did not lose a lot of taste ...but some.

Yes the thyrogen shots really cost (I think 4 or 5,000???).

There is also a test for thyroglobulin (which is a blood test)...I think that's a marker for cancer.

You probably want to consult a real radiation oncologist to get options. Especially if you decide to go ahead with RAI. A real oncologist should know what the proper dosage is too.

If you get RAI, you have to be isolated for about a week. Eat very bland food (everything has iodine in it from salt). Plus you have to be off your synthroid and let your body get very hypothyroid.

Look through some of my posts...as well as those of others.

Nancy likes this comment
My RAI Post

Be sure to read the comments also...tips on how to prevent salivary gland issues.

Nancy likes this comment

RAI

Just wondering if anyone in Canada knows what the cost of radioactive iodine therapy is in Canada. I have insurance, but it’s the kind where I have to pay up front and will be reimbursed. I’m concerned it will be quite pricey and I may not have the upfront $.

Sign in or sign up to post a comment.
I would just call the hospital and see if I could get an estimate.
It's not that uncommon, so they should be familiar with it.
Like Sterling stated, thyroid controls everything. Mine went hypo from chemo in '91-92, took a couple years to go hypo. I had no idea what was wrong with me; up was down, down was up.....such a lil organ could make you feel either so good or SO bad. Blessings on your RAI.
Nancy likes this comment
Sign in or sign up to post a comment.
rollerFetching more entries....
avatar

Vital Info

Posts

December 27, 2018

Toronto, Canada M4A 2

August 28, 1962

Cancer Info

Thyroid Cancer

Papillary thyroid cancer

August 28, 2018

Thyroidectomy

Lumps in neck, fatigue, cough, sore throat, loss of voice

Stats

Posts: 3
Photos: 1
Events: 0
Supporters: 5
Friends: 6
Comments:
-Made: 0
-Received: 8
Views:
-Posts: 742
-Photos: 231

New Here?

We are a community of cancer survivors supporting each other. Sign up to comment or create your own cancer blog. Already a member? Sign in